Less than 1/3rd of Americans support legislation creating National Healthcare Claims Database: What are implications for your Personal & Consumer Privacy?
WASHINGTON D.C. (Texas Insider Report) Earlier this year the Senate Health Education Labor & Pensions Committee passed the Lower Health Care Costs Act" (S.1895) out of committee.
Background: Fill Me In
This database would be maintained by a non-profit entity which would collect health care claims and data from all private insurance carriers and public health programs including self-insured employers.
Important Details Still Need to be Addressed: The Latest
A newly published white paper raises some questions about whether there are appropriate protections to safeguard the APCDs personally identifiable health information.
Specifically there are concerns about the security of the health claims information as it is transferred from the non-profit entity that collects the data to a broad set of secondary users.
The legislative text is not clear on the following points:
- Do HIPAA protections apply to the secondary user that receive the data from the non-profit entity?
- Are data use agreements permitted?
- How easily can de-identified information be re-identified exposing the identity of individuals and their private consumer health information?
Why These Details Matter: Privacy is Important
With threats to data security on the rise as data breaches become more frequent its no surprise that a recent poll found nearly all Americans 94 believe the privacy and security of their personal healthcare information is important.
Whats more fewer than a third of Americans support legislation that would create a national healthcare claims database or APCD.
In addition approximately 74 of Americans agree that putting health information in a national database would put the privacy of millions of Americans health information at risk.
Instead 4 in 5 Americans say that we need to study how best to safeguard our data before putting private information at risk.
Strengthen Protections: Our Position
Consumer access to meaningful actionable and credible information on health care providers and services is critical to better health care decision-making. The Chamber supports the goal of improving access to health care cost and quality information that is appropriate and actionable for consumers and plan sponsors.
However any proposal must recognize that the health care market and the provision of services by the various industries are inherently different from other private sector markets.
A careful balance must be achieved between the benefits of providing transparency information to consumers against the sensitivity of rates in competitive privately-negotiated contractual agreements within health sector industries.